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Johnathan Sosbe is a senior at Athens Academy in Crawfordsville, and on the outside he seems like your typical teen. But he’s living with the life-threatening rare blood disease, hemophilia. Johnathan and Mary Brunkhart, a career counselor with innovative hematology, joined Angela in the studio to share some advice for other students facing medical conditions that may affect their schooling.
Kokomo Boy Diagnosed with Hemophilia
By: Fox59 WATCH: Griffin was diagnosed with hemophilia shortly after his birth. Learn what Dr. Charles Nakar, IHTC pediatric hematologist, Griffin, and his father have to share about the diagnosis process and living with hemophilia.
“I had no idea how bad I felt,” Local woman shares her life-changing diagnosis with a rare disease
By: Rachel Law TERRE HAUTE, Ind. (WTHI) - More than 300 million people worldwide are living with a rare disease, according to the National Rare Disease Day organization. To honor that statistic, National Rare Disease Day falls on February 29, a rare date. Allyson...
‘You start thinking it’s all in your head’ Terre Haute woman shares story ahead of Rare Disease Day
By: Shelby Reilly TERRE HAUTE, Ind. (WTWO/WAWV) – Rare Disease Day is February 29 and one local woman hopes to spread awareness about a disease she was born with, but didn’t know she had for most of her life. Allyson Newport was born with Hereditary Hemorrhagic...
Hoosiers unite for Sickle Cell Advocacy Day
By: Jade Jackson Hoosiers from across the state gathered at the Indiana State Capitol to encourage lawmakers to consider the needs of Hoosiers living with sickle cell disease. The rare inherited blood disorder occurs when red blood cells become hard, sticky and...
Advocates raising awareness of sickle cell disease
By: Ryan Trares The spikes of severe pain seemed neverending. Lena Harvey has lived with sickle cell disease throughout her entire life. The 39-year-old Indianapolis resident has suffered through the constant fatigue, the sores, and most frequently the pain that the...
Working as a Team: Parents, Youth, & Health
By: Brittany Savage, Nurse Practitioner, Bleeding Disorder Transition Care Clinic, Indiana Hemophilia & Thrombosis Center Think back to the first time you entered a doctor’s office or called the pharmacy without your parents by your side. It might have been...
Tackling Seasonal Affective Disorder
By: Jeremy Jenkins INDIANAPOLIS (WISH) — The start of winter means shorter days, and the lack of sunshine can lead to being less active and engaging. These things combined can cause you to have a change in your mood known as Seasonal Affective Disorder. Like the...
Dr. Anne Greist’s Retirement Message
A MESSAGE FROM DR. GREIST Dear Patients and families, I am writing to let you know that I will be retiring from patient care as of Jan 1, 2024. After that date, I will remain at IHTC in a leadership role to provide guidance for the Center’s patient care and programs....
There is an urgent need for minority blood donors in Indiana
By: Nico Pennisi INDIANAPOLIS — Tanisha Hackett has been living with Sickle Cell Disease her whole life. “In my lifetime, I’ve had several crisis, sickle cell crises," Hackett, a patient at Indiana Hemophilia & Thrombosis Center said. When in crisis, Hackett...
Navigating school with chronic health conditions: Advocacy and support
By: Dylan Hodges Sickle cell disease (SCD) is a widespread condition affecting millions globally, with approximately 100,000 cases in the United States. Among the affected individuals is Xzayveon Garner, a Ben Davis High School freshman embarking on a new academic...